Head Cases

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You Don't Have To Be Mobile To Move Someone


I have a friend named Michael, he's a quadriplegic, and he leads a remarkable

life. Though mute, and blind in one eye, Michael taps out short stories, directs

photo shoots and prints out the pictures. There are dozens of abbreviations in his

head for sentences, phrases and paragraphs. He creates these, and puts them in his

computer to use for communicating with others. His computer is his voice.

He burns CDs to give as Christmas presents, birthday presents and just

being nice to someone presents. He then goes a step further and creates CD

covers, complete with song titles and pictures.

Michael's stories are descriptive and beautiful. Many are poignant tales of his

past travels in Europe, travels with his parents and siblings before the accident

that left him paralyzed. You are with him on his journeys, through the sights and

sounds of his written words. I enjoy reading them. Even though so many make me

cry, there is no self-pity in his words. He isn't regretting his loss; he's reliving

what he had. This is his gift. He takes you with him. It can take him half an hour

to write these words, because he uses his cheek to tap out the story in Morse

Code. Everything he accomplishes on his computer is done this way: stories,

prints, CDs. Still, he can make his day more productive than a lot of mobile

people I know, including me. Few of us can imagine the willpower it takes to do

what he does every day.

Michael is also a local celebrity. His photos have been featured in several art

shows in his hometown of Buffalo. Strangers are linked because of him. I often

meet someone, who knows someone, who knows him. I describe his

accomplishments and people know who he is. They are impressed just hearing

about him.

I started walking for exercise because of him. He once stated, via his computer,

that he was amazed at how people choose to waste a perfectly good pair of legs.

Then he smiled; we all did. His humor is infectious and inspiring. He must

spell out his needs with a series of dots and dashes where one letter can be four

taps long. This, however, will not deter him from using his cheek to tap out a

funny comment that has us mobile people rolling with laughter. Tapping out a

funny comment: now that's determination.

Although he has no voice, he says a lot worth listening to. I owe my knowledge

and use of computers to Michael. He learns programs on his own through

trial and error. His persistence keeps frustration at bay. He's never intimidated by

anything new. As long as his computer is on, and his switch is near his cheek, he

needs little or no help to do what he wants. There was no way I could be around

him, watching him work, and not be shamed into the techno century. I bought a

computer and have now been learning, right along with Michael, the intricacies of

these machines.

There are times when he is sad or angry, but what impresses me, is how

infrequently he displays negative emotions. I've seen some people looking

sad or expressing anger so often that I wonder if they ever smile. They should

meet Michael and realize that they're walking and talking, so why waste energy

on negative emotions. Meet my friend and realize what you have and what

you could lose. Meet Michael and be inspired.

Michael has programmed his main requests into his computer with ‘please' at

the end. There are abbreviations, which he put in his PC that do more than

express his needs. He has compliments programmed in there too, and they're not

just empty words, but are full of his appreciation for what you do for him.

Michael is so considerate, that he has coded a separate and personalized ‘good

day', ‘good night' and ‘thank you', for every nurse that has taken care of him

since he's had a computer. That is a lot of unwarranted typing, but it's his way,

and he knows we nurses appreciate it.

I have never seen anyone meet Michael and not relax around him. He has a

somewhat magical effect on people. His casual nature envelopes all in his

company. Using his cheek and determination, he touches so many people that

he is a pleasure to be around. I wish I could share his life with the world. So many

could benefit from his attitude. His aspirations to make his life as full as possible

are a testament to the inner strength in all of us, if we choose to seek it out.

Michael makes CDs that move you to dance, he writes stories that move you to

tears, and types comments that move you to laughter. With a tap of his cheek, he

motivates those around him to higher levels of awareness and appreciation for

being alive. He lip-syncs the songs he hears on his stereo, and with one eye,

he sees so much to live for. He creates recipes that everyone in his life enjoys.

Everything is richer in his world of few limitations. He conquers as many

obstacles as he can, and exhausts all avenues of a new venture before giving up.

We could all learn from his triumphs. Now please excuse me; I have to get

moving. I have a friend to keep up with.