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Printed from https://shop.writing.com/main/profile/blog/kenzie/month/6-1-2025
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by Kenzie Author IconMail Icon
Rated: ASR · Book · Writing · #1160028

Fibro fog, pain, writing sandwiched in between. Quotes. Sermon notes. Encouragement.

A Texas Sunrise

Sunrise on Surfside Beach, Texas

A friend, William Taylor, took this picture. He visits Surfside Beach with his dogs almost every morning, watching the sun rise while the dogs prance about at the water's edge.

This is only about ten miles from where I lived in Lake Jackson, Texas. Sadly, I only visited this beach about four times in the six years I lived nearby.




Each day is a challenge. A challenge to get by without thinking about the fibromyalgia pains. A challenge to stay awake when chronic fatigure wants to take over. And a challenge to navigate through fibro fog.

I haven't been writing as much as in the past. For years, I wrote at least 500 words a day. Now, I'm lucky if I write 500 words in month. Sigh.

For more information about what my day (or life) is all about with fibromyalgia, chronic fatigue, chronic pains, IBS, depression and everything else thrown in, check this out:

It's a New Day Open in new Window. (E)
My pain and welcome to it.
#1028189 by Kenzie Author IconMail Icon


Sunrise on Surfside Beach, Texas
June 18, 2025 at 4:35pm
June 18, 2025 at 4:35pm
#1091775


I've said it before. Phooey fizzfarts.

I used to smoke. I have COPD. Since my heart attack 4 years I'm on oxygen. And my pulmonary doctor has been keeping an eye on a teeny tiny nodule in each lung for over a decade.

I had a CT scan on 6/11. Normal thing that I do every few years.

Uh-oh. There's a new lump in one of my lungs, about the size of a large grape. (The teeny tiny ones they've been watching are the size of an average pill.)

Now I have to have a PET scan so my doctors can figure out what the lump is or might be.

My primary care physician, my breast cancer oncologist/hematologist and my pulmonary doctor are fussing amongst themselves because they all seem to want to be in charge of this new hiccup.

Hello! I'm here too people.

I scheduled a PET scan near my house, so that I don't have to go begging for a ride. For my breast cancer issues, the Pink Ribbon folks are awesome. But they don't handle driving people to appointments about other problems. Two of my docs preferred that I go to a different provider for the PET scan. The other doesn't care where it is done.

Meanwhile, I reminded a nurse that they all need to have their arguments without me. For pity's sake, I'm supposed to be living a life of little stress so that I can heal.

As always, I treasure your prayers.

June 1, 2025 at 4:35am
June 1, 2025 at 4:35am
#1090410


So what happened at my first face-to-face meeting with my breast cancer surgeon? (Our first meeting was via zoom call last year.)

She agreed with me . And I with her.

#1
any kind of operation is dangerous for me because of my COPD, being on oxygen 24/7, being unable to lie flat on my back comfortably, having heart problems, having had a heart attack, having a stent, being on two blood thinners (which, theoretically should be stopped before any surgery because of bleeding problems when you take blood thinners), being overweight and unable to exercise much until SOME DOCTOR helps get me a portable oxygenator (right now I have an oxygenator at home and tiny oxygen canisters to take with me that only last about 60-90 minutes). Plus being 73 and having all of my other maladies, like fibromyalgia, (which they now think could be Hashimoto's instead, after all these years!!!), arthritis, Reynaud's syndrome and veins and arteries that jump around when they are poked.

#2
Besides, under the current treatment, taking just one medication (and having dozens of people worldwide praying for me), the tumor shrunk. In the first 6 months it went from the size of a plum to the size of a large grape. In the next 6 months, it shrunk just a wee bit. But it didn't stay the same and it didn't grow. And I still don't have any lumps in my lymph nodes.

So, the surgeon wants us to continue the current treatment, and she said that she would "duke it out with the oncologist/hematologist if she has to". Needless to say, I really loved this doctor and her staff. And my driver from the Pink Ribbon folks.

Breast cancer warriors are awesome people.


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Printed from https://shop.writing.com/main/profile/blog/kenzie/month/6-1-2025