Recovery after a brain tumor was removed. |
When asked how am I doing? I often reply, Seven Degrees Left of Center. After a powerful seizure, an MRI scan found a lime-sized tumor in my brain. This happened in September of 2019. The tumor was located about one inch to the left and seven degrees from the center of my brain touching the hippocampus. An area of the brain responsible for coding and decoding language and memories. I have to start over each day because I've forgotten where yesterday ended. Over time, the brain learns to adapt. |
This week, I accomplished a task I didn't want to do. The weather was damp and chilly, yet I pressed on, connecting to my RV trailer to take it in for repair. Delayed by my lousy time management and the weather, I arrived just as the mechanics started their lunch break. I was wet and angry at myself for being late. An hour later, the mechanic said they could finish the repair if I waited instead of leaving the RV. Fair enough, yet my attitude didn't get any better. Another two hours passed before the job was completed. As I was leaving, I said, "Don't be offended, but I hope I don't need to see you all again. But if I do, I know where you are." Rather heatedly, the maintenance manager replied, "I hope we don't see you either." Those last few words weighed on me the following day—so much so that I called the manager. She was multitasking with an upset customer. Anyway, I apologized for the day before, and she replied, "You are a friend. I am dealing with someone who is not a friend. Thanks for the call. You have made my day better." The words, "You are a friend," touched me. Words are our most extraordinary power with each other. If you read this fare, hit the "like" button if you agree. "Words are, in my not-so-humble opinion, our most inexhaustible source of magic. Capable of both inflicting injury, and remedying it." --Dumbledore |
I have worked on memory exercises and word games to improve cognitive strength. There is a measurable improvement in my real-time communication. The next day, though, well, it can still be like starting over. The slate isn't completely blank like it was two years ago. However, forgetting simple conversations is still frustrating. The best analogy is FOG. The fog is thick some days, but those days are fewer. The daily fog is thinner, like going up and down hills on the road. At the top, the fog is thick and hard to see through. Lower down, it thins out or even clears for a time. I am grateful for these improvements. The fog today is rather thin. It's time to take advantage of the clarity and write, write, write. |
Dignity, or, to be more specific, self-dignity, has been missing from me. I didn't even realize it was gone until recently. Now, I want it back. Trauma has seasons and waves similar to grief. One day, I can feel okay. The next day, for a brief time, I remember the world I lost. Not just for me but for the world my family and friends lost. I also realize I lost something else: dignity. The dignity to realize it is okay; I need help with simple tasks. Writing is one of those tasks. These words would not make sense if it weren't for AI assistance. I admire my wife's dignity in visiting doctors with me. However, I can't remember the visits without my wife's acceptance. Even recording them for me to listen to later is little help. She has to explain the essential topics several times. God bless her, and please pray for her if you have a minute. I am growing my dignity in an attempt to write about my life. I am relearning that I can still have dignity in my successes. I will never be the same person I was, but that doesn't mean I can't find a path to dignity in being the person I am growing into. |
I have to admit to some laziness lately. Audiobooks... The audiobooks are convenient, but they remove some personal imagination from the story. At least for me. What do you think? The same laziness has crept into my writing. I write half the word count now. The same can be said about this blog. I have thought about giving it up. But the journey isn't over. Learning to live with a brain injury is a daily struggle. Yesterday was a day that went horribly wrong. Laziness can also be an issue. I pissed off my wife. I had a day where each decision went wrong. This happens sometimes. She hit a breaking point, and I do not blame her. My apologies only go so far. She vented on how much she misses the old me. Believe me, though I can't remember the old me, I miss him too. Life is hard. I don't acknowledge how hard it is on those who love me. I do see this as progress. Learning or relearning communication is another skill in my reeducation. It is like graduating from the 8th grade. High School is around the corner. The lessons are more complicated and sometimes painful. However, a time similar to my teen years looks like a struggle about to happen. No one told me the emotional side of recovery is as equal to the educational side. I learned a valuable lesson. I believe it will stick. My wife apologized and forgave me. As I told her, I do not think she owed me an apology. We both need to acknowledge that we are together and that it is ok to get frustrated. We shouldn't hold it in so long it has time to boil. I am glad I don't have to go through puberty again; at least, I hope not. |